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Four conference guests gather in a circle to talk

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Four people sitting in a circle, engaged in a lively and cheerful conversation, with one person holding a card and another laughing brightly.

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Thriving Lived Experience Workforces

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Nulla consequat massa quis enim. Donec pede justo, fringilla vel, aliquet nec, vulputate eget, arcu. In enim justo, rhoncus ut, imperdiet a, venenatis vitae, justo. Nullam dictum felis eu pede mollis pretium. Integer tincidunt. Cras dapibus. Vivamus elementum semper nisi. Aenean vulputate eleifend tellus. Aenean leo ligula, porttitor eu, consequat vitae, eleifend ac, enim.

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Nulla consequat massa quis enim. Donec pede justo, fringilla vel, aliquet nec, vulputate eget, arcu. In enim justo, rhoncus ut, imperdiet a, venenatis vitae, justo. Nullam dictum felis eu pede mollis pretium. Integer tincidunt. Cras dapibus. Vivamus elementum semper nisi. Aenean vulputate eleifend tellus. Aenean leo ligula, porttitor eu, consequat vitae, eleifend ac, enim.

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Nulla consequat massa quis enim. Donec pede justo, fringilla vel, aliquet nec, vulputate eget, arcu. In enim justo, rhoncus ut, imperdiet a, venenatis vitae, justo. Nullam dictum felis eu pede mollis pretium. Integer tincidunt. Cras dapibus. Vivamus elementum semper nisi. Aenean vulputate eleifend tellus. Aenean leo ligula, porttitor eu, consequat vitae, eleifend ac, enim.

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close up. young woman sitting in a circle of her friends

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Donec quam felis, ultricies nec, pellentesque eu, pretium quis, sem. Nulla consequat massa quis enim.

Donec pede justo, fringilla vel, aliquet nec, vulputate eget, arcu. In enim justo, rhoncus ut, imperdiet a, venenatis vitae, justo.

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Two people in a cafe drinking coffee at a wooden bench

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Thoughtful young businessman looking away

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History timeline

For a more in depth look into the information presented in the timeline below, download the detailed history document.

Download the detailed history
1600s
1700s
Late 18th century
1930s
1947
1951
Late 1950s to 70s
1967
1969
1970s and 80s
1974
1975
1976
1978
Pre 1990s
1990s
2000s
2010s
2020s

Ex-inmates, family, friends and allies make changes to how people in ‘mad houses’ or asylums are treated.

Temperance movement for the abstinence from alcohol use involving family members and friends.

Ex-asylum patients first employed within the institutions they had been detained in due to their ability to empathise with their ‘inmates’.

Alcoholics Anonymous (AA) is
formed as a peer support group for abstinence from alcohol.

First WA Alcoholics Anonymous (AA) meeting

Al Anon (US) is formed by family members to support relatives and friends of people linked to Alcoholics Anonymous (AA).

The rise of ‘people power’:

Civil right and social movements…

First Grow Group meeting

Arnstein’s ‘Ladder of Participation’

This was founded on increasingly prevalent ideas of ‘citizen control’ and ‘citizen participation’.

Formation of a range of:

Activist groups including the
Mental Patients Union (UK)…

First LGBTIQA+SB peer organisation incorporated in WA

  • Holyoake established
  • First paid Lived Experience (Peer) worker at Grow WA

ARAFMI public meeting (now HelpingMinds)

World Health Organisation Declaration of Alma Ata – “The people have the right and duty to participate individually and collectively in the planning and implementation of their health care.”

  • 1947 first WA Alcoholics Anonymous (AA) meeting
  • 1967 first Grow Group meeting
  • 1974 first LGBTIQA+SB peer organisation incorporated in WA…
  • Late 80’s early 90’s WA Substance Users’ Association established
  • 1990 Schizophrenia Fellowship (Mental Illness Fellowship of Western Australia) incorporated
  • 1991 first funded Sex Worker Peer workforce in WA and Australia…
  • 2001 Association of Mental Health Consumers formed
  • 2003 Q-Life Peer services started
  • 2004 Body Esteem Program began…
  • NGO’s like Ruah, St Vincent de Paul Society and Neami National create peer LE (Peer) programs
  • 2010 Mental Health Matters 2 was founded by individuals and families
  • 2010 Mental Health Commission established with a Consumer Advisor employed in 2011…
  • 2020 Lived Experience representation in mental health and Alcohol and Other Drugs governance structures
  • 2020 Solid Steps Alcohol and Other Drugs prison program starts
  • 2020 Consumers of Mental Health WA is funded to lead the ASPIRE Project…
close up. young woman sitting in a circle of her friends

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Donec quam felis, ultricies nec, pellentesque eu, pretium quis, sem. Nulla consequat massa quis enim.

Donec pede justo, fringilla vel, aliquet nec, vulputate eget, arcu. In enim justo, rhoncus ut, imperdiet a, venenatis vitae, justo.

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Woman Standing To Address Self Help Therapy Group Meeting In Community Center

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Thoughtful young businessman looking away

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Donec quam felis, ultricies nec, pellentesque eu, pretium quis, sem. Nulla consequat massa quis enim.

Donec pede justo, fringilla vel, aliquet nec, vulputate eget, arcu. In enim justo, rhoncus ut, imperdiet a, venenatis vitae, justo.

Two people in a cafe drinking coffee at a wooden bench

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Lorem ipsum dolor sit amet, consectetuer adipiscing elit. Aenean commodo ligula eget dolor. Aenean massa.

Cum sociis natoque penatibus et magnis dis parturient montes, nascetur ridiculus mus. Donec quam felis, ultricies nec, pellentesque eu, pretium quis, sem. Nulla consequat massa quis enim.

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Differences between Lived Experience (Peer) and traditional workforces

The key points of difference in concepts, language and values between Lived Experience (Peer) and traditional workforces.[2]

 

Lived Experience (Peer) WorkforcesTraditional Workforces
Values and power arrangements
Values BasedProfession values
Personal responsibilityProfessional accountability
Oriented to choiceControl oriented
Awakens people’s powerPower over people
Basic concepts
HumanisticScientific
BiographyPathology
Distressing experiencePsychopathology

Understanding Peer Drift

Peer Drift refers to a situation which a Lived Experience (Peer) Worker’s role and responsibilities gradually change and no longer fully reflect Peer Values and Principles[3]

The potential for Peer Drift increases when working alongside non-peer roles, particularly those that apply a biomedical lens to their practices[4]. It is further exacerbated by a lack of understanding of the purpose and benefit of the role resulting in other team members requesting that the Lived Experience (Peer) worker works outside of their scope (for example as tool of persuasion).

The table below was created from the above reference [4]

Peer Drift Looks LikeReasons behind Peer DriftMitigation Strategies
Clinical language useBoundary crossing (more friendship based than worker)Sole Lived Experience (Peer) role or tokenistic roleLack of personal understanding of Peer ValuesWorkplace education and training in Lived Experience (Peer) roles and values Click here for link to training
Highly administrative based (for consumer facing roles)Focused on KPIs and outcomesLack of understanding and valuing of Lived Experience at an organisation levelConfusion around the role of Lived Experience WorkersCo-development of HR policies to promote healthy workplace culture.
Not adhering to Peer ValuesJudgemental or deficit-focused approachUnsupported roles/ lack of co-reflection opportunitiesValue clash between worker and organisationCo-development of service policy and procedure

Example: Workforce readiness assessment tool

Domain 1: Awareness & InclusivityLevel 1Level 2Level 3Level 4
How is lived experience participation and engagement and its relationship to developing our organisational Lived Experience (Peer) Workforces thought about in your organisation?We have not had the conversation about lived experience participation and engagement and its relationship to developing our organisational Lived Experience (Peer) Workforces?We recognise that it is an ongoing issue but no policies have been created to dateWe have policies and procedures in place created by Senior management, These try to address the spectrum of issues experienced by staffWe have policies and procedures in place created by Senior management in partnership with people with lived experience, These try to address the spectrum of issues experienced by staff
Does your organisation currently support individuals with Lived Experience of Mental Health and/or AOD use?We do not currently support individuals with Lived Experience of MH/AODSome of the individuals we support have Lived Experience of MH/AODApproximately half of the individuals we support have Lived Experience of MH/AODMost or all of the individuals we support have Lived Experience of MH/AOD

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References

Where to next?

Lived Experience (Peer) Workforces: